Introducing the Alport Hub
Developed in partnership with the Stoneygate Trust, the Alport Research Hub is accelerating research towards new approaches to early diagnosis and the development of treatments specifically for Alport syndrome.
Better genetic testing and medications called ACE (Angiotensin Converting Enzyme) inhibitors, which slow down the loss of kidney function, have improved the diagnosis and treatment of Alport syndrome in the last decade, but more progress is needed. By enabling the work of a research lab in Manchester, led by Professor Rachel Lennon, and a virtual hub using information from RaDaR (National Registry of Rare Kidney Diseases), led by Professors Danny Gale and Neil Turner, the Alport Research Hub brings together the expertise and resources to drive progress for patients living with Alport syndrome.
The University of Nottingham’s new project grant forms part of the Alport Research Hub programme of work.
- The Renal Warrior Project. Join Now
- Source: https://www.kidneyresearchuk.org/2024/03/26/pregnancy-and-alport-syndrome-a-new-way-to-look-at-the-kidney-filters/