Making healthcare more equitable
Daniel now works with organisations such as NHS England, Breakthrough T1D, Diabetes UK and Kidney Research UK, as a patient advocate to help improve healthcare. He has previously worked with the National Institute for Health and Care Excellence (NICE).
Daniel says: “I want to bring my experiences into spaces and conversations where voices like mine may not have been heard. I want to create change to make life easier for people living with chronic conditions and young people who may face these challenges in the future. I want to help organisations address health inequalities, giving people access to information and care.
“I also want to bring care, for conditions like diabetes and kidney disease, together. It’s important to view the whole person rather than just a condition, because it’s not just about diabetes or kidney disease, it’s life. Health, work, financial pressures, family and other aspects of life all influence our wellbeing and can impact on each other.
“I share a lot of my journey online and want people living with chronic illnesses to know they’re not alone. Even though it isn’t perfect, I want to show it’s possible to live a good life with these conditions. If I can help one person not feel how I did as a teenager, then that’s amazing.”
“Life is going well now; it feels like I’m grasping a second chance at life. My healthcare team is one of the best I’ve been supported by. They’ve always understood me, spoken openly, and wanted to help without judgement. I’m passionate about the advocacy work I do and there seems to be a shift in thinking which is exciting for the future.”
- The Renal Warrior Project. Join Now
- Source: https://www.kidneyresearchuk.org/2024/11/14/inequalities-in-healthcare-led-to-my-kidneys-failing/